研究启发创新思维 推动业界持续发展
耆智园重视脑退化症护理的优质发展,我们相信要持续优化服务和紧贴脑退化症人士的需要,必须投入资源和心思进行研究,以了解不同护理方案的成效。因此,耆智园的研究团队凭借丰富经验,以专业及专注的态度进行脑退化症相关的研究,期望借着具前瞻性的研究结果,和业界一起探索创新的护理模式,并予以实践。
自2005年起,耆智园已完成及发布超过30项统计调查及成效研究,探讨的范畴包括:大众对脑退化症的误解、脑退化症服务前线员工压力、减少约束对脑退化症人士的益处、社区脑退化症人士的走失情况、脑退化症日间服务的效能、认知训练效能、电话心理教育支援成效、针灸疗法等,研究结果为推动优质脑退化症护理服务之发展提供实证及发展方向。
进行中的研究
iSupport 是由世界卫⽣组织 (WHO) 开发的针对脑退化症照顾者的网上教育和技能培训计划。它包括五个学习模块:(1)有关脑退化症的⼀般信息;(2)与照顾者有关的信息;(3)⾃我保健;(4)照顾脑退化症⼈⼠;(5)解决脑退化症状。
我们现正招募初至中期脑退化症人士的同住家属照顾者就iSupport 网站提供使用者意见,从以使网站更符合照顾者的需求并方便其使用。家属照顾者会随机分派至 (1) 网站测试组: 浏览iSupport网站及参加每月参加1次45分钟的网上会谈(共6次)或 (2) 对照组: 每月收到研究员发出的有关脑退化信息的讯息(共6次)。
所有参加者均会在研究开始时、6个月后、9个月后填写1份(每次约30分钟)网上问卷。此外,参加者会每月 (每次约5分钟) 自行填写有关使用医疗服务的记录。
参加者会收到总值最多150港元的超巿礼券酬谢。
[研究招募已完结]
为了让脑退化症人士能安在家中接受训练活动,赛马会耆智园推出为期24节的网上训练课程,以推迟脑退化症人士的认知能力衰退、提升他们的生活满意度及社交能力。研究将收集脑退化症人士及其照顾者在开始参与和完成课程时在认知、心理健康、社交生活及照顾者压力的数据以作分析。
赛马会耆智园推出脑退化检测及支持计划,协助怀疑有脑退化症人士进行检测,并为他们及其家属照顾者提供确诊后的支持服务。本计划的成效研究旨在探讨如何改善脑退化症人士及其照顾者的心理健康。参与本计划的脑退化症人士及其家属照顾者在开始参与和结束计划时会接受访问,以收集有关脑退化症人士及照顾者的心理健康、脑退化症人士认知能力的数据。
研讨会 Wong, B., Chui, K., Chan, H., Cheng, T., Ho, F., & Kwok, T. (2024). Potential of Early Diagnosis and Post-diagnostic Support Programme to Reduce Old Age Home Admission upon Hospital Discharge in People with Dementia. Presented at the The 36th Global Conference of Alzheimer’s Disease International, Krakow, Poland.
早发性脑退化症人士 (65岁以下脑退化症人士) 及其照顾者在家庭、工作、财务、临床特征等方面与年长的脑退化症人士有所不同,现时缺乏相关支持。赛马会耆智园推出本港首个以早发性脑退化症人士为服务对象的先导计划,支持怀疑/确诊有早发性脑退化症人士及其照顾者。本计划的成效研究探讨计划如何改善早发性脑退化症人士及其照顾者心理健康和推迟照顾者压力。二百位参与本计划的早发性脑退化症人士及其家属照顾者在开始参与和离开计划时、计划结束三个月及六个月后会接受访问,以收集有关早发性脑退化症人士的心理健康、认知能力、活动能力、照顾者压力及计划的成效的数据。
研讨会 Wong, B., Chui, K., Au, L., Cheng, T., Pun, K., Ho, F., & Kwok, T. (2024). Effects of an Empowerment Intervention on Enhancing the Collaboration and Well-being of People with Younger Onset Dementia and Their Care Partners. Presented at the The 36th Global Conference of Alzheimer’s Disease International, Krakow, Poland.
研究指出脑退化症人士住院时因陌生及嘈吵的环境和身体受约束而有机会变得混乱和身心功能转差。面对这些入院导致的急剧转变,家属照顾者或会感到无所适从而在脑退化症人士出院后将他们送往安老院舍。得到香港赛马会慈善信托基金的捐助,赛马会耆智园推出为期十二星期的「回家易」离院康复计划,以促进脑退化症人士的复康,令他们可继续居家安老。本计划的成效研究探讨计划如何改善离院后的脑退化症人士的功能和改善照顾者心理健康。二百位参与本计划的脑退化症人士及其家属照顾者在开始参与和离开计划时、计划结束三个月及六个月后会接受访问,以收集有关脑退化症人士的活动能力、认知能力、营养、心理健康、照顾者压力、及计划后居住情况的数据。透过与香港中文大学医学院那打素护理学院合作,本成效研究亦会探讨其成本与社会效益。
脑退化症人士的亲人在照顾脑退化症人士的过程中会遇到各种挑战,例如不知道该如何处理与脑退化症有关的征状,或决定是否送亲人去院舍等;这些挑战会令照顾者的身体和心理承受各种负面影响。为此,耆智园推行一个照顾者支持服务,由专业人士向脑退化症人士的家属照顾者提供各种照顾上的支持。
本项目的成效研究结果显示照顾者因对脑退化症诊断和进展缺乏认知,及因为亲人的健康状况感到压力。许多照顾者也没有得到小区支持。在本项目中,专业人士提供了有关脑退化症和未来照顾计划的资料,及为照顾者提供适合他们情况的照顾方案以便纾缓照顾困难。
照顾者表示满意本项目的服务。他们觉得本项目能够协助照顾者为亲人安排诊断咨询,并使照顾者在接受服务后能更主动寻求小区支持。
研讨会 (初步结果) Wong, B., Ho, F., & Kwok, T. (2022). Development of tracking technology to facilitate the development of dementia friendly community. Presented at the 35th Global Conference of Alzheimer’s Disease International, London.
赛马会耆智园得到香港赛马会慈善信托基金资助,为家属照顾者和社会大众提供不同类型的培训和支援,使脑退化症人士可在友善关爱的社区生活;同时,本园推行大规模的公共教育,令公众更加了解脑退化症及如何在日常生活中帮助脑退化症人士。计划的成效评估将量度参加者在活动后在行为、态度、状况和知识方面的变化,以及他们对计划的满意程度。
已完成的研究
文献 Lee, EK-P, Wong, B, Chan, PHS, et al. Effectiveness of a Mindfulness Intervention for Older Adults to Improve Emotional Well-being and Cognitive Function in a Chinese Population: A Randomized Waitlist-controlled Trial. Int J Geriatr Psychiatry. 2021; 1-11.
研究会 Wong, B., Xiao, L., Cheng, T., Leung, P., Ho, F., & Kwok, T. (2024). Development of Culturally Sensitive Dementia Caregiving Psychoeducation Intervention: Views from Chinese Care Partners on iSupport Adaptation. Presented at the 36th Global Conference of Alzheimer’s Disease International, Krakow.
文献 Chan, H. Y. L., Ho, F. K. Y., Chui, K. C. M., Wong, B. P. S., Chui, M. Y. P., Zhao, Y., ... & Kwok, T. C. Y. (2022). Evaluation of a multicomponent restraint reduction intervention in care homes. Collegian, 29(6), 837-842.
文献 Wong, B., Kwok, T., Chui, K., Cheng, T., Ho, F., & Woo, J. (2021). The impact of dementia daycare service cessation due to COVID‐19 pandemic. International Journal Of Geriatric Psychiatry. doi: 10.1002/gps.5621
研究结果显示脑退化症人士及家属照顾者对这项介入感到满意。当脑退化症人士能独立地完成游戏,他们的社交参与度、自尊心、及自信心有所提升。家属照顾者指出脑退化症人士的身体健康、认知能力、及心理健康在参与游戏介入后有所提升。此外,他们表示这项介入让他们有休息的机会。同工认为这项介入提升了他们的脑退化症服务护理技巧。
总括而言,游戏介入是一项可在社区推行的介入模式,这项介入能协助同工在社区提供优质的脑退化症照顾,能使家属照顾者行到休息,并能协助同工发展其脑退化照顾专业。我们建议(1)长者服务机构可将这介入纳入为恒常服务;(2)家属照顾者应鼓励有脑退化症的家人参加这项介入。
文献 Yan E, Wong A, Chan W, Kwok T. Misconceptions About Dementia and Its Implication for Willingness to Seek Treatment and Knowledge in Dementia Related Information. Hong Kong Practitioner. 2006;28(3):108-113.
研讨会 Yan, E, Kwok, T, Ho, F, Li, J. Misconception about dementia and its effects on treatment seeking tendency. Paper presented at the 13th Annual Congress of Gerontology; November 2005; Hong Kong. [下载PowerPoint 简报]
文献 Lam LC, Lee JS, Chung JC, Lau A, Woo J, Kwok TC. A Randomized Controlled Trial to Examine the Effectiveness of Case Management Model for Community Dwelling Older Persons with Mild Dementia in Hong Kong. International Journal of Geriatric Psychiatry.
文献 Kwok T, Twinn S, Yan E. The Attitudes of Chinese Family Caregivers of Older People with Dementia towards Life Sustaining Treatments. Journal of Advanced Nursing. 2007;58(3):256-262.
文献 Yan E, Kwok T, Lee D, Tang C. The Prevalence and Correlates of the Use of Restraint and Force on Hospitalised Older People. Journal of Nursing and Healthcare of Chronic Illness. 2009;1(2):147-155.
研讨会 Yan E, Kwok T, Ho F, Li J. Nurses' Attitudes towards Restraint-use among Dementia Elderly Patients. Oral presentation at the 14th Annual Congress of Gerontology; November 2006; Hong Kong.
文献 Kwok T, Yuen K, Ho F, Chan W. Getting Lost in the Community: a Phone Survey on the Community‐dwelling Demented People in Hong Kong. International Journal of Geriatric Psychiatry. 2010;25(4):427-432.
研讨会 Yuen K, Kwok T, Ho F, Li J. Getting Lost in the Community: A Phone Survey on the Aged Population in Hong Kong. Oral presentation at the 15th Annual Congress of Gerontology; November 2007; Hong Kong.
文献 Yan E, Ho F, Kwok T, Tang C. Factors Associated with Life Satisfaction of Personal Care Workers Delivering Dementia Care in Day Care Centers. Social Work in Health Care. 2007;46(1):37-45.
文献 Kwok T, Chau WW, Yuen K, et al. Who Would Benefit from Memory Training? A Pilot Study Examining the Ceiling Effect of Concurrent Cognitive Stimulation. Clinical Interventions in Aging. 2011;6:83.
研讨会 Ting K, Yuen K, Chung E, Li J, Ho F, Kwok T. Effectiveness of Physical Exercise in the Ageing Population. Oral presentation at the 16th Annual Congress of Gerontology; November 2008; Hong Kong.
文献 Kwok T, Lam K, Yip A, Ho F. Knowledge of Dementia among Undergraduates in the Health and Social Care Professions in Hong Kong. Social Work in Mental Health. 2011;9(4):287-301.
研讨会 Lam K, Yip A, Kwok T, Ho, F. Knowledge of Dementia Among Undergraduates in the Health and Social Care Professions in Hong Kong. Paper Presented at the 17th Annual Congress of Gerontology; November 2009; Hong Kong.
文献 Kwok T, Ho D, Chan G, Ip I, Wong B, Ho F. Evaluation of Day Care Services for Demented Clients in Hong Kong. Asian J Gerontol Geriatr. 2014;9:5-9.
研讨会 Lam KC, Hui E, Yip A, Kwok T, Ho, F. Usage of Day Care Service by Persons with Dementia in Hong Kong. Poster presented at the 18th Annual Congress of Gerontology; 2010; Hong Kong.
文献 Kwok T, Young D, Yip A, Ho F. Effectiveness of Day Care Services for Dementia Patients and Their Caregivers. Asian J Gerontol Geriatr. 2013;8:9-15.
研讨会 Yip A, Kwok T, Ho F, Li J. The Effectiveness of Day Care for People with Dementia and Their Family Caregivers: The JCCPA Experience. Paper Presented at the 17th Annual Congress of Gerontology; November 2009; Hong Kong.
文献 Kwok T, Wong A, Chan G, et al. Effectiveness of Cognitive Training for Chinese Elderly in Hong Kong. Clinical Interventions in Aging. 2013;8:213.
文獻 Bai X, Kwok T, Chan N, Ho F. Determinants of Job Satisfaction in Foreign Domestic Helpers Caring for People with Dementia in Hong Kong. Health & Social Care in the Community. 2013;21(5):472-479.
文献 Kwok T, Leung PC, Wing YK, et al. The Effectiveness of Acupuncture on the Sleep Quality of Elderly with Dementia: a Within-subjects Trial. Clinical Interventions in Aging. 2013;8:923.
文献 Kwok T, Wong B, Ip I, Chui K, Young D, Ho F. Telephone-delivered Psychoeducational Intervention for Hong Kong Chinese Dementia Caregivers: a Single-blinded Randomized Controlled Trial. Clinical Interventions in Aging. 2013;8:1191.
文献 Kwok T, Bai X, Li J, Ho F, Lee T. Effectiveness of Cognitive Training in Chinese Older People with Subjective Cognitive Complaints: a Randomized Placebo‐controlled Trial. International Journal of Geriatric Psychiatry. 2013;28(2):208-215.
研讨会 Kwok T, Yip A, Cheng S, Ho F. The Effects of Cognitive Training in Older Adults: A Randomized Controlled Trial. Presented at the 25th International Conference of Alzheimer's Disease International; March 2010; Thessaloniki, Greece.
文献
Bai X, Kwok T, Ip I, Woo J, Chui M, Ho F. Physical Restraint Use and Older Patients' Length of Hospital Stay. Health Psychology and Behavioral Medicine. 2014;2(1):160-170.
Kwok T, Bai X, Chui M, et al. Effect of Physical Restraint Reduction on Older Patients' Hospital Length of Stay. Journal of the American Medical Directors Association. 2012;13(7):645-650.
文献 Kwok T, Au A, Wong B, Ip I, Mak V, Ho F. Effectiveness of Online Cognitive Behavioral Therapy on Family Caregivers of People with Dementia. Clinical Interventions in Aging. 2014;9:631.
文献 Bai X, Ho D, Fung K, et al. Effectiveness of a Life Story Work Program on Older Adults with Intellectual Disabilities. Clinical Interventions in Aging. 2014;9:1865.
文献 Chan H, Ho F, Chui K, et al. Capacity Building for Dementia Care in Community Care Services: A Mixed Methods Approach. BMC Geriatrics. 2020;20:1-10.
文献
Young D, Ng P, Kwok T, et al. The Effects of an Expanded Cognitive Stimulation Therapy Model on the Improvement of Cognitive Ability of Elderly with Mild Stage Dementia Living in a Community—a Randomized Waitlist Controlled Trial. Aging & Mental Health. 2019;23(7):855-862.
Young D, Ng P, Cheng D, et al. Outcomes of Expanded Cognitive Stimulation Therapy Group for Mild-Stage Dementia: Four-Month Follow-Up. Research on Social Work Practice. 2019:1049731519859432.
文献 Kwok T, Bai X, Kao H, Li J, Ho F. Cognitive Effects of Calligraphy Therapy for Older People: A Randomized Controlled Trial in Hong Kong. Clinical Interventions in Aging. 2011;6:269.
研讨会 Yip E, Yuen K, Li J, Ho F, Lam S, Kao S, Kwok T. Effectiveness of Calligraphy Groups in Retaining Cognitive Function During Ageing. Paper Presentation at the 16th Annual Congress of Gerontology; November 2008; Hong Kong.
文獻 Wong OL, Kwong PS, Ho C, et al. Living With Dementia: An Exploratory Study of Caregiving in a Chinese Family Context. Social Work in Health Care. 2015;54(8):758-776.
文献 Chan W, Wong B, Kwok T, Ho F. Assessing Grief of Family Caregivers of People with Dementia: Validation of the Chinese Version of the Marwit–Meuser Caregiver Grief Inventory. Health & Social Work. 2017;42(3):151-158.